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In Control of my Fibro: Symptoms tracker, pacing advice and notebook for Fibromyalgia warriors

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The National Institute for Health and Care Excellence (NICE) produced new guidelines on the management of chronic pain (one of the major features of fibromyalgia) in 2021. This guidance focuses on a multidisciplinary approach to chronic pain, which involves a combination of healthcare professionals such as physiotherapists, occupational therapists and counsellors helping to improve people's day-to-day functioning. I make sure I treat myself with a massage or a facial. It’s not indulgent, it helps. It’s so important to relax your body, mind and muscles and I know I’ll sleep well that night.

Headaches. Tension headaches, migraines and pain in the jaw or face may affect people with fibromyalgia. A musculoskeletal (MSK) specialist, such as a physiotherapist or MSK physician (health professionals who specialise in treating conditions that affect muscles and joints). Keeping active with regular exercise can be really helpful for people with fibromyalgia. It can help relieve pain and stiffness, increase your strength and improve how easily you move around. It can improve general wellbeing too.Other medications can be used to treat pain, sleep and mood. These include anti-inflammatories, antidepressants and sleep medicines.

I’d get terribly low and I was in pain everywhere. But you just get on with things don’t you. I didn’t want to make an issue out of it. My daughter has JIA and Sjogren’s syndrome and she was so ill, I couldn’t think about how I was feeling.

Physical symptoms such as headache, weakness, dizziness, numbness/tingling, bowel problems and hair loss.

Exercise is so important. But don’t just go and exercise, you need to see a physiotherapist or a gym instructor. Doing the wrong exercises can be as harmful as doing nothing. Make yourself keep walking, because when you stop it’s so difficult to get going again. We don’t currently know the exact reason why people get fibromyalgia. But there does seem to be a common link with things such as arthritis, a traumatic event, and mental health and well-being. Tramadol is a stronger painkiller that has been shown to be of limited benefit in fibromyalgia but only when used with paracetamol. However the studies have not shown strong evidence and, due to the fact that tramadol is addictive and can cause dependency issues, it is not generally recommended. Tiredness is common and is sometimes severe. It is often associated with a poor sleep pattern where people wake feeling unrefreshed. Fatima G, Das SK. Deciphering the role of sleep in fibromyalgia syndrome. J Sleep Med Disord 2016; 3(4):1055At first, you may find that your pain and tiredness become worse, particularly if you’re starting to exercise muscles that haven’t been used for a while. Try to do the same amount of exercise each day, so you build up your muscle strength and your stamina. Painkillers - such as paracetamol, anti-inflammatory painkillers such as ibuprofen, or stronger painkillers such as codeine - are often tried to reduce pain. However, they often do not work very well in fibromyalgia. This is because painkillers work in the periphery (on muscles, skin etc) and do not affect the hypersensitivity of the CNS (brain) pain receptors seen in fibromyalgia. Anti-inflammatory painkillers, in particular, showed no evidence for benefit, and can themselves be harmful if used in the long term. All drugs have potential side effects. It’s important to talk to your doctor about how to get the best balance between pain relief and any unpleasant effects. If you feel like a treatment isn’t helping you, talk to your doctor. In the past people with fibromyalgia have been prescribed a variety of different types of drugs, such as:

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